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COMPREHENSIVE CARE &
SUPPORT (PLHAS)

India is a resource poor country and hence most of the people living with HIV come from poor socio-economic backgrounds. In a disease like AIDS, which has implications that are health related, social & financial, it becomes imperative that any institution that volunteers to provide care & support for people living with HIV/AIDS (PLHAs), look at a holistic approach. In the Indian scenario, HIV/AIDS is today an epidemic that has crossed over all social & gender demarcations. Under these circumstances, it becomes all the more important to look at a multi-disciplinary approach where each unit complements the other. Today we have over 5 million people infected with HIV in our country. Prevention efforts are on, but all predictions so far point towards the numbers growing over the next few years. At some point of time these people will require care be it medical or psychological. It seems more right to say that PLHAs need to be treated within general hospital settings. But the reality is that today HIV/AIDS care in India is becoming a specialization of sorts and PLHAs do get better care when they approach institutions that are actively working in this area.

Medical care:

In our country most people learn that they are infected with HIV only when they start falling ill.
Hence they first reach out in-order to get medical help.

  • Access to quality Medical & Nursing care
  • Quality medical consultation through out-patient & in-patient services at all stages of the disease.
  • Nursing care round the clock.
  • Access to medicines for all opportunistic infections.
  • Availability of diagnostics.
  • Critical care with referral services for specialized care.
  • Training

Access to HAART:

Highly active anti-retro-viral treatment (HAART) is the back-bone of HIV/AIDS care. Freedom Foundation has a comprehensive policy with a eligibility cri which encourages and enables women and children to access ART at all its sites free of cost. Freedom Foundation has been providing and monitoring free ART for the last four years at all its existing facilities. Today the Indian government is gearing up to provide free HAART for PLHAs. Even though India has the advantage of manufacturing generic versions of the drugs, still the majority of PLHAs cannot afford them. The NGO sector needs to join forces with Govt. of India in strengthening the access to HAART programme.

ART component

  • Evaluation of immune status.
  • Rule out opportunistic infections.
  • Assessment of patient readiness.
  • Treatment education.
  • Counselling
  • Family preparedness.
  • Understanding and developing Adherence structure
  • Commencement of treatment with initial monitoring.
  • Assistance with procurement 7 supply of drugs.
  • Nutrition counselling.
  • Monitoring and follow up

Palliative care:

Care for those in end stage AIDS.

  • Inpatient nursing care.
  • Pain management.
  • Continuation of opportunistic infection management.
  • Counselling & family support.
  • Last rites

Counselling:

  • Voluntary counselling & testing services.
  • Post-test counselling.
  • Supportive counselling
  • Family counselling.
  • Trauma, bereavement & other associated problems.
  • Group therapy.

Awareness, Prevention, Care and Support & Community Education:

  • Awareness & sensitization to organized groups like schools, industries, etc.
  • Targeted interventions with marginalized groups and other vulnerable communities.
  • Employee Assistance Programmes (EAP) on HIV/AIDS & Substance Abuse with the Corporate Sector, Public Sector undertakings, & the Transport sector.
  • EAP on HIV/AIDS & Substance Abuse for various law enforcement agencies
  • Sensitization and inclusion of volunteers.
  • Sensitization & block placements for post-graduate students of various fields.

Prevention of parent to child transmission of HIV:

  • Assessment, inclusion & coverage of ante-natal clinics.
  • Provision of counselling & education.
  • Training to MCH providers.
  • Voluntary counselling & testing.
  • Partner counselling & option of testing
  • Post-test counselling.
  • Family counselling
  • Testing for STIs.
  • Nutritional supplements
  • Prophylaxis & feeding options.
  • Testing of the infant.
  • Formation of self-help groups
  • Community health education
  • Community mobilization.
  • Referrals for care & support
  • Access to HAART
  • Income generation initiatives, SHG

Address Treatment issues of chemical dependency: (Alcoholism & Drug Addiction)

  • Assessment & evaluation
  • Treatment & rehabilitation options
  • Support group mechanisms
  • Family issues & support

Care for children infected with HIV inclusive of orphan care:

  • All components of medical care.
  • Nutritional assistance
  • Education assistance
  • Referrals
  • Access to HAART
  • Access to food, shelter & clothing
  • Vocational training
  • Foster care

Care for children infected with HIV inclusive of orphan care:

  • Formation of SHGs.
  • Nutrition & education assistance programmes
  • Income generation
  • Micro-savings
  • Peer support

Advocacy & legal issues:

  • + ve speaking
  • Rights abuse & access to legal addressal by partnering with
  • Lawyers Collective/Alternative Law Firm, etc.
  • Referral & net working with government agencies especially for child rights.
  • Partnering with the Women’s cell.
  • Media coverage.
  • Lobbying for change at various levels.
  • Corporate social responsibility, from sensitization to resource mobilization.

Networking:

  • With government hospitals including HAART roll out centers.
  • Private hospitals for specialized care.
  • With the +ve peoples networks.
  • Formation of NGO consortiums.
  • Referrals with other NGOs.
  • Diagnostic & Pharma partnerships
  • With various organized community groups.
  • Setting up Networks of infected/affected women, children, & men

Home Based Care:

  • Mobilize communities to identify and support the needs of children and their families.
  • Community volunteers are trained to provide accurate information on HIV/AIDS, prevention, care and support for whole families and community members.
  • Identification of Children affected with HIV/AIDS (CAA)
  • Referrals of CAA & PLHAs for acute interventions and care
  • Sensitization on needs of children infected and affected by HIV/AIDS and their families.
  • Addressing stigma and discrimination at all levels
  • Providing Psychological support (grief, stress, succession planning, self-esteem, pre-test & post-test counselling) to all infected/affected children and their caregivers
  • Recreational activities, an opportunity for all children in the community to come together
  • Training and support for extended families and other community members to provide foster care
  • Networking with other PLWHA groups
  • Home-based care team, to provide medical assistance, nursing care education and training (home care kits, nutrition counselling, prevention of OI’s, palliative care, infection control, & ART)
  • Create a system of referral for palliative care and hospitalization
  • Referrals for TB, PPTCT, &VCTC
  • Behaviour Change Communication, Life Skill education especially for children in the age group of 8 to 18 to handle vulnerability on prevention and other life situations, to increase community support for CAA and their families.
  • Creating active linkages with Baljyothi schools and Anganwadi centres for imparting education and nutritional support

With support from the Global Fund round IV, Freedom Foundation as a sub-grantee and will make available this comprehensive care & support services at four of the 6 high prevalence states over a period 5 years.

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